Well, we tried the 4% lidocaine for Munchkin #2's methotrexate injection. It sort of helped. Munchkin #2 feels that I didn't use enough of the creme, however. The rheumatologist's office told us to use a pea sized amount which I tried to do. My munchkin felt that it, "Wasn't a big enough pea." So...we'll see how it goes next week. In the meantime, it did help a bit. It was better than nothing.
It is so very frustrating watching this disease's effect on my kid. Yesterday, she went to her private lesson for her current sport of choice. She does some private lessons so she can work out at her own pace depending on how her joints are feeling that day. I spoke with her coach and he told me that he really would love to have my kid on his 'top' competitive team. Munchkin #2 wants that, bad. But, I had to share my concern that, "Ok. We put her on the team, the arthritis kicks in and then where will the team be? And...I'll be out the $2000 bucks it took to get the uniforms, pay the competition fees etc..." He admitted to me that he did think I was making the right choice in saying that, no this year lets try a non-competitive approach to the sport and see how things go. If the joints can take it, than we can up the ante next year. He also shared with me how Munchkin #2 does have problems with her wrists and knees but tries to 'ignore' it. So frustrating that my very competitive sport loving kid is held back by something she has little control over. And, I never ever want to say 'no' to a sport she wants to work at. Feeling like a bad mom and a good mom at the same time.
Last night, after her 30 minute private lesson, her right knee was puffy and sore. We needed to make a run to Target, and she was limping a bit as we walked through the store and the parking lot. Frustrating.
When I checked on her this morning before she was up, I noticed her alarm clock's batteries were flat. So....being Mom, I woke her up. I gave her my hand so she could grab hold and pull herself up to a sitting position in bed to help her 'wake up'. She didn't have enough strength in her hands to do it with one hand. She needed both, and she told me, "Mom, you have to pull. I'm not strong enough in the morning." Frustrating.
All this is certainly nothing to shed tears over. It just is very frustrating.
I have to remind myself sometimes that she is brilliant (she's a straight A student), she's got a kind heart, and that she is still a great kid. I have to work at keeping my perspective. We have a beautiful safe place to live (two in fact), we have a wonderful loving extended family, we have great friends, and I know that God is always with me and my munchkins. AND my son also totally rocks. I love my kids. I know I am blessed and my family is blessed. Too many blessings to count.
I can't wait for summer. Mornings drinking coffee on the back deck in the woods, hanging out with my kids at various lakes, roaming the woods, picking and snarfing blackberries and raspberries, and just plain old getting to spend quiet time with my family - husband included.
At least the methotrexate works the vast majority of the time.
Peace.
It is so very frustrating watching this disease's effect on my kid. Yesterday, she went to her private lesson for her current sport of choice. She does some private lessons so she can work out at her own pace depending on how her joints are feeling that day. I spoke with her coach and he told me that he really would love to have my kid on his 'top' competitive team. Munchkin #2 wants that, bad. But, I had to share my concern that, "Ok. We put her on the team, the arthritis kicks in and then where will the team be? And...I'll be out the $2000 bucks it took to get the uniforms, pay the competition fees etc..." He admitted to me that he did think I was making the right choice in saying that, no this year lets try a non-competitive approach to the sport and see how things go. If the joints can take it, than we can up the ante next year. He also shared with me how Munchkin #2 does have problems with her wrists and knees but tries to 'ignore' it. So frustrating that my very competitive sport loving kid is held back by something she has little control over. And, I never ever want to say 'no' to a sport she wants to work at. Feeling like a bad mom and a good mom at the same time.
Last night, after her 30 minute private lesson, her right knee was puffy and sore. We needed to make a run to Target, and she was limping a bit as we walked through the store and the parking lot. Frustrating.
When I checked on her this morning before she was up, I noticed her alarm clock's batteries were flat. So....being Mom, I woke her up. I gave her my hand so she could grab hold and pull herself up to a sitting position in bed to help her 'wake up'. She didn't have enough strength in her hands to do it with one hand. She needed both, and she told me, "Mom, you have to pull. I'm not strong enough in the morning." Frustrating.
All this is certainly nothing to shed tears over. It just is very frustrating.
I have to remind myself sometimes that she is brilliant (she's a straight A student), she's got a kind heart, and that she is still a great kid. I have to work at keeping my perspective. We have a beautiful safe place to live (two in fact), we have a wonderful loving extended family, we have great friends, and I know that God is always with me and my munchkins. AND my son also totally rocks. I love my kids. I know I am blessed and my family is blessed. Too many blessings to count.
I can't wait for summer. Mornings drinking coffee on the back deck in the woods, hanging out with my kids at various lakes, roaming the woods, picking and snarfing blackberries and raspberries, and just plain old getting to spend quiet time with my family - husband included.
At least the methotrexate works the vast majority of the time.
Peace.
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Be peaceful and respectful.